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News

  • Help TCAPP Help Children when you purchase through Amazon.com

    If You Shop on Amazon, Consider making TCAPP a recipient of 0.5% of your purchase!!! It doesn't cost you anything extra!!!

    Click here to get started!

  • EDS to be discussed with Katie Couric

    Ehlers-Danlos Syndrome will be discussed on the daytime talk show, Katie. It will air next Tuesday, December 10th at 3pm EST on ABC.  

    The EDS community has been following the tragic story about the Huber family's false allegations of child abuse. Their daughter has finally been diagnosed with Ehlers-Danlos Syndrome and charges have been dropped.

    Bria and Andrew Huber and Rana and Chad Tyson will discuss both of their family's stories and talk about Ehlers-Danlos.  Over the last few weeks, each news story has gone a little bit deeper into clarifying what EDS is. It's been challenging because there has been so much said in these interviews that didn't make the "final cut" for the short segments. We are hoping that the Katie show will present a more in-depth discussion of this critical topic.



  • CRPS Partners In Pain Inc.’s Symposium

    TCAPP hopes you will attend the CRPS Partners in Pain, Inc.'s Symposium where one of our Medical Advisory Board members, Dr. Chopra will be speaking.

    Date: November 16, 2013
    Location: The New College Building of Drexel University 245 N 15h Street, Philadelphia PA

    For Registration Information and Fees, please visit: http://crpspartnersinpain.com/

    PRESENTERS:

    Dr. Pradeep Chopra, MD (Pain Management Physician and Adjunct Professor of Brown Medical School)

    Dr. Guillermo Alexander, Ph.D. (Drexel University School of Medicine Professor, Research, co-authored many studies with Dr R J Schwartzman)

    Jess Feinberg (College student studying social work and CRPS patient in remission)

    Nancy Cotterman, RN BSN (Executive Director of CRPS Partners In Pain, Inc., Published Author, CRPS Advocate and has CRPS)

    Shirley Shae (mom of Kaitlyn Nello who has had CRPS for 17 years)

  • Global Gene Seminars


    Global Genes will be hosting a series of free webinars in 2013 geared towards educating and empowering our RARE community.  Find out more about the Caregivers Webinar on November 21.

    Click Here


  • New England Get Together and "Dough" Raiser

    Come meet others, have a good snack, a drink or two and also help raise some money for TCAPP.  Sue Pinkham and Aurora Richards, TCAPP Board Members, will be at Uno's Waltham on November 9th from 1-5 p.m.  Come find out how you can get involved and make a difference in the lives of children with pediatric pain.  

    UNOs will be donating 20% of your dining bill to TCAPP all day!  All you need to do is download a donation voucher by clicking here.  Thank you for your support.  

    What:  TCAPP Fundraiser and Meet and Greet
    When:  November 9th - all day, or 1 - 5 pm to meet TCAPP Board Members
    Where: Uno's Waltham, Massachusetts, 155 Bear Hill Road, Waltham, MA
    Phone:  (781) 487-7177



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