Medical Think Tank
The first step in our journey is to hold a medical think tank.
TCAPP’s first Think Tank will be focusing on multidisciplinary approach to the diagnosis and treatment of complex chronic pain in children with Ehlers Danlos Syndrome.
Ehlers Danlos often goes undiagnosed or misdiagnosed in children despite the complex chronic pain they experience for years. Because Ehlers Danlos is a connective tissue disorder, it impacts every organ in the body and therefore truly warrants a multidisciplinary approach to treatment. Some of the co-morbid pain conditions that accompany a diagnosis of EDS are, gastroparesis, occult tethered cord, chiari malformation, bleeding/clotting disorders, cervical-cranial instability, TMD, migraines, Mast Cell Activation Disorder, Complex Regional Pain Syndrome, Postural Orthostatic Tachycardia Syndrome and the list goes on.
On Sunday, August 4, 2013, TCAPP and Brown Medical School will host the first-ever pediatric pain think tank, bringing together esteemed pediatric and adult medical experts from across the country to come together to share ideas and strategize how to offer better treatment. We need to get everyone together in one room and discover common ground. Dr Chopra, head of TCAPP's Medical Advisory Board states "We need to educate each other from our different perspectives and training so we can find our what works and what doesn't, what we know and what we need to know."
During the conference, anesthesiologists, psychiatrists, neurologists, geneticists, neurosurgeons, dentists, immunologists, hematologists, and cardiologists from Brown University Medical School, the University of California in Los Angeles, John Hopkins, Virginia Commonwealth University Medical Center, Tufts in Boston and other institutions will join forces to discuss how best to evaluate and treat children with Ehlers Danlos Syndrome. The aim is to generate a consensus statement to guide treatment of kids around the country and to guide forces to conduct multi-center clinical trials to test new therapies and treatments.
Medical CMEs are available through Brown School of Medicine. If you are an interested medical professional, or have a medical professional interested in attending, please submit the following information to email@example.com and put Pain Conference in the Subject line:
first name, last name, degree (if they are a doc or other professional), their affiliation (hospital, association etc), email