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  • Eden

    My name is Eden and I am seven years old. I was diagnosed with Chiari when I was two and Ehlers Danlos Syndrome when I was four. I have been going to doctors since I was a toddler.I have had two surgeries (brain and spinal cord) and get a lot of MRIs. Read My Full Story

  • Josh

    My name is Josh and I am 13 years old. When I was 11 my life changed dramatically after I was diagnosed with Pots and RSD……….. The summer after my 6th grade year I noticed that I was getting dizzy after running around or swimming or playing.  Read my full story

  • Rosemary

    Hi, my name is Rosemary and I am 20 years old.  When I was 14 I had a surgery for a torn tendon in my ankle, which we would later discover was caused by Ehlers Danlos Syndrome. It was after this surgery that I developed Reflex Sympathetic Dystrophy. The pain I had was still an unknown until a month before my 17th birthday when I was officially diagnosed with RSD.  Read More

  • Natali

    Throughout my mother's whole pregnancy, she thought she was going to have a perfect, healthy baby.I was born on December 15, 1995 around 9:30 pm. As soon as I was born, the room fell silent. It was very clear to see that something was wrong with me.  Read my full story

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